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Old 03-18-2009, 02:37 PM   #1
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Default Klinefelters Syndrome Awareness Week

Hi all, as some one who is XXY, I'll let you all know its;

Klinefelters Syndrome Awareness Week!


Start Time: March 15, 2009

End Time: March 21, 2009

Location: The World



What is Klinefelters Syndrome ?

http://www.nlm.nih.gov/medlineplus/k...ssyndrome.html

Klinefelter Syndrome Awareness Council

http://xxyaware.blogspot.com/






cheers.

S
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Old 03-19-2009, 09:14 AM   #2
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cheers for that. I had heard of this but didnt know too much about it. It would be great to hear about your experiences of being xxy and what it means to you.

xmer
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Old 03-19-2009, 01:48 PM   #3
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Thanks for posting and do share your experiences!

My ex-girlfriend is XXY. She is born with male genitalia, so doctors assumed that she is male until they found that she had ovaries. They ended up reassigning her gender as female. She underwent a vaginoplasty, years of painful operations, dilating, hormone injections as a child and she said it was horrific. She is 36 this year, has an extreme pear-shaped figure and even gets periods. However, she also has quite a bit of facial and body hair as well as an abnormally large clitoris. She identifies as genderqueer, often talked about having a phantom penis and how she wished she had a choice.
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Old 03-19-2009, 05:24 PM   #4
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Thanks for the links, DJ_S. I have enjoyed talking to a lot of XXY people. I also have an intersex condition, even though I don't talk about it much.
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Old 03-19-2009, 05:56 PM   #5
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Quote:
Originally Posted by Cors View Post
Thanks for posting and do share your experiences!

My ex-girlfriend is XXY. She is born with male genitalia, so doctors assumed that she is male until they found that she had ovaries. They ended up reassigning her gender as female. She underwent a vaginoplasty, years of painful operations, dilating, hormone injections as a child and she said it was horrific. She is 36 this year, has an extreme pear-shaped figure and even gets periods. However, she also has quite a bit of facial and body hair as well as an abnormally large clitoris. She identifies as genderqueer, often talked about having a phantom penis and how she wished she had a choice.
That was done to her as a child without consent? Wow. Just...wow.
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Old 03-19-2009, 09:30 PM   #6
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It's really weird... I'd never heard of this until about 3 weeks ago when I went on a date with a guy who has Klinefelters. It's weird because it now has popped into my life 4 times in less than a month.

*On a side note about intersex/circumcision.. I decided if I had a boy I wouldn't get him circumcised either. Same for why my daughter doesn't have her ears pierced. When she's older, if she wants them fine. I know it's little and petty, but it will be her choice then. I think I would have to do the same if I had a child born with both male and female genitalia. Unless there was some medical reason I *had* to decide, it'd probably be something I'd let them decide later.
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Old 03-20-2009, 02:18 AM   #7
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Originally Posted by missaf View Post
It's really amazing what parents and then adult children have to deal with in this kind of situation. My parents made a choice for me, too, at the age of six, and I had dramatic and painful surgery to cure my own intersex condition. As a teenager and adult, I sometimes wish my parents would have let me choose when I had the cognizance to do so. Even though I'm all girl and have the childbirth experience to show it, I sometimes wonder what life would have been like had I gotten to choose. I don't blame or fault my parents, I understand it's a hard choice, and they did what they thought was best.

As a mom, I decided not to have my son circumcised for this very reason. It's his body, it's not a medical necessity, so it's his choice. If he was born with the same condition I had? I honestly couldn't tell you what I would have done.

In the end, my intersex condition actually stemmed from brain tumors growing on my pituitary gland. Had more doctors understood my condition, I would have had a really different life in all aspects, not just my intersex condition.
Thank you for sharing that Misaf. It astounds me how little the medical profession seem to know when it comes to people who are intersexed and how easily they seem to make a decision so early that has a 50/50 chance of being the right one. I'm glad things worked out for you and that you now know the root cause too.
Although its not a story of genetics this reminds me of the story of David reimer. I first watched a documentary about him a few years back.
http://www.bbc.co.uk/science/horizon...rnedgirl.shtml
This seemed even more, god the only word i can use is 'insane' that they decided he should be a girl because he was actually 100% male, but had a botched operation on him penis when he was a baby which pretty much destroyed it, so they decided to just give him a vagina and hormones.
This case really highlighted for me the medical proffesssions ignorance and their dogged determination to prove and experiment at the expense of a human life. In this case, a psychologist called Dr Money was trying hard to prove his lifes work, that 'nurture' can override 'nature'. Pretty much if this 'experiment' (which is really what it was) didnt work out it would have disproved many of this guys theories. It didnt work out obviously, David (brenda) was messed up so badly and KNEW he was a boy his whole life all the while Dr money tried to convince him he wasnt. It was really disgusting.
Sadly David took his own life a few years ago. This was a painful reminder for everyone that gender is more complicated than just bodies and that it is only the individual who can KNOW what gender they are.
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Old 03-20-2009, 07:10 PM   #8
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Originally Posted by mergirl View Post
cheers for that. I had heard of this but didnt know too much about it. It would be great to hear about your experiences of being xxy and what it means to you.


No worries mergirl! I will post soon
xmer
Quote:
Originally Posted by Cors View Post
Thanks for posting and do share your experiences!

My ex-girlfriend is XXY. She is born with male genitalia, so doctors assumed that she is male until they found that she had ovaries. They ended up reassigning her gender as female. She underwent a vaginoplasty, years of painful operations, dilating, hormone injections as a child and she said it was horrific. She is 36 this year, has an extreme pear-shaped figure and even gets periods. However, she also has quite a bit of facial and body hair as well as an abnormally large clitoris. She identifies as genderqueer, often talked about having a phantom penis and how she wished she had a choice.


Hey Cors, thank you for sharing.

I cannot comprehend the decisions that people make onto others...

Quote:
Originally Posted by Geektastic1 View Post
Thanks for the links, DJ_S. I have enjoyed talking to a lot of XXY people. I also have an intersex condition, even though I don't talk about it much.
Hey Geektastic

The reason I talk about it is, that it's all new to me, in may it will be 3 years since finding out.

And has totally transformed my life for the better, yes it's been one hella rollercoaster ride, but I feel now that thinhgs are starting to settle, less side efx, less severe reactions, but I am my own guine pig...

I'm an open book generally, which can be hard at times, but that's who I am and these days, well for the first time in my life I have a "base happiness" something I've never had before.





Quote:
Originally Posted by That1BigGirl View Post
It's really weird... I'd never heard of this until about 3 weeks ago when I went on a date with a guy who has Klinefelters. It's weird because it now has popped into my life 4 times in less than a month.

Lol I'm open to share exp and chat in general, feel free!
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Old 03-20-2009, 09:15 PM   #9
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Quote:
Originally Posted by DJ_S View Post
Hi all, as some one who is XXY, I'll let you all know its;

Klinefelters Syndrome Awareness Week!


Start Time: March 15, 2009

End Time: March 21, 2009

Location: The World



What is Klinefelters Syndrome ?

http://www.nlm.nih.gov/medlineplus/k...ssyndrome.html

Klinefelter Syndrome Awareness Council

http://xxyaware.blogspot.com/






cheers.

S
Thanks for the info and honesty. I had never even hear of this syndrome.

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Old 03-22-2009, 11:07 AM   #10
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Quote:
Originally Posted by DJ_S View Post
Lol I'm open to share exp and chat in general, feel free!
Thanks for that!
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