CPAP - new user..... - Page 28

BigBeautifulMe · 03-14-2010, 11:12 AM

Yeah, cpap.com is where I always go. They're awesome.

I've said it a gazillion times in this thread, but their forum cpaptalk.com is the bees knees.

olwen · 03-14-2010, 11:27 AM

Quote:

Originally Posted by BigBeautifulMe

Yeah, cpap.com is where I always go. They're awesome.

I've said it a gazillion times in this thread, but their forum cpaptalk.com is the bees knees.

Oh I just realized I already have the forum bookmarked in my browser.

I should probably spend some time reading thru it.

JerseyGirl07093 · 03-15-2010, 12:23 AM

Quote:

Originally Posted by LillyBBBW

OMG I'M HAVING THE SAME PROBLEM!!!!! My lower front teeth have sore gums from this stupid mask, and the thing farts in the middle of the night waking me up. Gees! And sometimes one eye is totally swollen closed from air leakage. I want to hurl the thing straight at the wall. I don't know WHAT to do.

I hate when that happens and it wakes me up! Sometimes it's so noisy it scares me! lol

Quote:

Originally Posted by LillyBBBW

Hey I'm wondering about those Remzzz's. I don't know what the materal is made out of but couldn't someone feesably take a paper towel and cut it around to do the same thing? You got a whole roll to work with. Or even buy some fabric and make a bunch of those things with a cotton muslin material? They'd all be machine washable. Just wondering what makes these things in particular so special?

I was thinking the same thing. They are too expensive for me to buy all the time (if they work) and I was hoping that maybe once I got one and saw how it was made that I could maybe copy it.
I think what makes these things in particular so special is that whoever invented them thought of it first! lol It seems like a great idea and when I saw it I thought "Wow, it looks like something I could make and why didn't I think of this?"
Someone crafty could probably make some and sell them online.

LillyBBBW · 03-15-2010, 07:01 AM

Quote:

Originally Posted by JerseyGirl07093

I hate when that happens and it wakes me up! Sometimes it's so noisy it scares me! lol

I was thinking the same thing. They are too expensive for me to buy all the time (if they work) and I was hoping that maybe once I got one and saw how it was made that I could maybe copy it.
I think what makes these things in particular so special is that whoever invented them thought of it first! lol It seems like a great idea and when I saw it I thought "Wow, it looks like something I could make and why didn't I think of this?"
Someone crafty could probably make some and sell them online.

I've been cutting paper towels to see if that will make a difference.

One paper towel makes two of those things from what it looks like. It works well enough so that I feel inspired to keep with it to see if it works out.

adasiyan · 08-25-2010, 10:20 PM

So,

I guess i'm the newest member to the cpap club.
I've had apnea for years but only just started to do something about it in the lead up to WLS.
Initially after my consultation with the sleep specialist, they sent me home with a blood oxygen monitor to wear overnight, and from the results from that they had me in for a sleep study.
The doc said i averaged 112 episodes per hour and diagnosed me with severe central obstructive sleep apnea ( he said its the most severe case hes seen in someone my age - i'm 27)
I did the sleep study ( with all the icky wires and uncomfy hospital bed) and because i'm a mouth AND nose breather, i wore a full face mask.
It was horrible!
The humidity in the air and the warmth of it that was coming through completely threw me off balance, it was making me so mucus-y so the technician had to turn the heat off the humidifier which made it a little better,however it still didn't help overall lol
I kept dozing off and choking and then waking up.
My specialist had an oxygen level blood test (the vampire took it from one of my arteries the morning after the study) and the results said my o2 levels were around 54% after the night on the cpap.
So, he's arranged for me to borrow a machine and got me a new mask to keep for a week, hoping that using it at home will help me become more accustomed to it (and so he can get the results from the machine) - i pick it up in about 2 weeks... definately not looking forward to it.
After i return it and get the results.. its another round of poking, prodding, heart and chest ultrasounds and xrays and a lung function test.
BLEH

Ps. it too 4 washes to get the goo out of my hair from the electrody things!

Risible · 08-26-2010, 09:57 AM

Adasiyan, just know that you're not alone with your sleep apnea and your struggles getting accustomed to a CPAP. I had a tough time getting used to mine after enduring years of disrupted, bad quality sleep (I finally submitted to the machine after almost nightly suffocation/drowning dreams, when I'm sure I was, in reality, suffering from lack of oxygen); now I love my CPAP, don't know what I'd do without it (never sleep again, I guess).

I can't stand the humidity and heat, so I've cranked them both down to zero. My mouth does dry out a bit, but that's preferable to the mucous-y alternative.

Good luck with your CPAP journey; be sure and read through this thread to pick up some good tips and to find support.

imfree · 08-26-2010, 12:44 PM

Quote:

Originally Posted by Risible

...snipped...

I can't stand the humidity and heat, so I've cranked them both down to zero. My mouth does dry out a bit, but that's preferable to the mucous-y alternative.

...snipped...

Yes Mam'e, Ms. Ris., If I don't have heat and
humidity off, on my BiPAP, woo-hoo!, my
sinuses swell up and cut off my air

!

BigBeautifulMe · 08-26-2010, 06:09 PM

I'm with you guys. No heat or humidity for me either.

adasiyan - you'll get really good advice on cpaptalk.com. Lots of experts there on central apnea, severe apnea, and autocpap trials. Go post!

adasiyan · 08-28-2010, 04:17 AM

Quote:

Originally Posted by BigBeautifulMe

I'm with you guys. No heat or humidity for me either.

adasiyan - you'll get really good advice on cpaptalk.com. Lots of experts there on central apnea, severe apnea, and autocpap trials. Go post!

Thanks for that -i've had a poke around and when im feeling a bit better ( major toothache atm) i'll chuck some posts on and see what people say.

imfree · 08-28-2010, 09:21 AM

Quote:

Originally Posted by adasiyan

Thanks for that -i've had a poke around and when im feeling a bit better ( major toothache atm) i'll chuck some posts on and see what people say.

Oh my, hahaha!!!, I just noticed your signature
statement!

Even with ADD, my life is
not as difficult as sucking meatballs through a
straw. I hope yours is going better than that.

03-14-2010, 11:12 AM	#676
BigBeautifulMe A wholllle lotta puddin'! Join Date: Oct 2006 Location: Virginia Posts: 7,987	Yeah, cpap.com is where I always go. They're awesome. I've said it a gazillion times in this thread, but their forum cpaptalk.com is the bees knees. __________________ "I just think your culinary choices could use more death of sentient creatures. Is that so wrong?" - Mini -Rosebud- I am imagining how lovely it would be to see your golden hair rising up over by belly when you are between my thighs -Rosebud- Like a cunnilingus sunrise

08-25-2010, 10:20 PM	#680
adasiyan Senior Member Join Date: Oct 2007 Location: Melbourne Posts: 126	So, I guess i'm the newest member to the cpap club. I've had apnea for years but only just started to do something about it in the lead up to WLS. Initially after my consultation with the sleep specialist, they sent me home with a blood oxygen monitor to wear overnight, and from the results from that they had me in for a sleep study. The doc said i averaged 112 episodes per hour and diagnosed me with severe central obstructive sleep apnea ( he said its the most severe case hes seen in someone my age - i'm 27) I did the sleep study ( with all the icky wires and uncomfy hospital bed) and because i'm a mouth AND nose breather, i wore a full face mask. It was horrible! The humidity in the air and the warmth of it that was coming through completely threw me off balance, it was making me so mucus-y so the technician had to turn the heat off the humidifier which made it a little better,however it still didn't help overall lol I kept dozing off and choking and then waking up. My specialist had an oxygen level blood test (the vampire took it from one of my arteries the morning after the study) and the results said my o2 levels were around 54% after the night on the cpap. So, he's arranged for me to borrow a machine and got me a new mask to keep for a week, hoping that using it at home will help me become more accustomed to it (and so he can get the results from the machine) - i pick it up in about 2 weeks... definately not looking forward to it. After i return it and get the results.. its another round of poking, prodding, heart and chest ultrasounds and xrays and a lung function test. BLEH Ps. it too 4 washes to get the goo out of my hair from the electrody things! __________________ Like Meatballs through a straw, So are the days of our lives.

08-26-2010, 09:57 AM	#681
Risible Monkey Daze Join Date: Aug 2006 Location: Muy Caliente Posts: 7,693	Adasiyan, just know that you're not alone with your sleep apnea and your struggles getting accustomed to a CPAP. I had a tough time getting used to mine after enduring years of disrupted, bad quality sleep (I finally submitted to the machine after almost nightly suffocation/drowning dreams, when I'm sure I was, in reality, suffering from lack of oxygen); now I love my CPAP, don't know what I'd do without it (never sleep again, I guess). I can't stand the humidity and heat, so I've cranked them both down to zero. My mouth does dry out a bit, but that's preferable to the mucous-y alternative. Good luck with your CPAP journey; be sure and read through this thread to pick up some good tips and to find support. __________________

08-26-2010, 06:09 PM	#683
BigBeautifulMe A wholllle lotta puddin'! Join Date: Oct 2006 Location: Virginia Posts: 7,987	I'm with you guys. No heat or humidity for me either. adasiyan - you'll get really good advice on cpaptalk.com. Lots of experts there on central apnea, severe apnea, and autocpap trials. Go post! __________________ "I just think your culinary choices could use more death of sentient creatures. Is that so wrong?" - Mini -Rosebud- I am imagining how lovely it would be to see your golden hair rising up over by belly when you are between my thighs -Rosebud- Like a cunnilingus sunrise

Thread Tools
Show Printable Version Email this Page
Display Modes
Linear Mode Switch to Hybrid Mode Switch to Threaded Mode