A tale from a nursing home

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Russell Williams

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Louise is seeing a kidney specialist and at the last appointment the kidney specialist told her that they have to start thinking about dialysis. The way things have been going I expect her to be on dialysis by Christmas. I very much hope that I am very wrong. Louise has been told to drink a lot more fluid and she has been drinking a lot more fluid. She is measuring her output to keep close track of what her output is. For several days she tried not taking fluid pills because some of them are hard on her kidneys and her weight went up rapidly. She took a fluid pills lost 10 pounds and 48 hours. She finally has felt that she is regained her strength enough so today we went driving. It is the first time she has driven the car since, I believe, 2009. She did a fine job.

She stopped driving when she realized that due to her sore hip (which has been replaced) in order to get her foot on the brake she had to use her hand to help lift it up off of the gas pedal so that it could reach the break.
 

moore2me

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Russell,

If Louise cannot use the brakes adequately, I recommend hand controls. I have used them myself for years on several of my cars during a bad spell of MS and the steering wheel can be used nicely to operate the brakes and the gas. Also if anyone wants to use the regular gas & brakes, they are still attached and continue to function normally. Most handicapped adaption places that work on vehicles can add them to a car. These controls work like those of a motorcycle and will hopefully let Louise continue to drive.

If you need more details I can look some up for you.

You also might be interested in the fact that my mother's next door neighbor was able to get home dialysis for the time his kidneys were not functioning. I am not sure how the whole thing was set up, but I think he used it for about a year. He also no longer has to have the dialysis.
 

Miss Vickie

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Louise is seeing a kidney specialist and at the last appointment the kidney specialist told her that they have to start thinking about dialysis. The way things have been going I expect her to be on dialysis by Christmas. I very much hope that I am very wrong.
I hope you're wrong too but dialysis isn't like it was 20 years ago. There are many options and it can be done outpatient with minimal discomfort and disruption. Also, since ideally they have to make a fistula between artery and vein in the arm it's a minor surgical procedure but it has to heal before it can be used.

Because my brother wasn't as on top of things as you guys, they used an emergency IJ site which doesn't work as well. So the earlier you guys start talking about this and preparing -- even if it's years before you need it -- the better.

Louise has been told to drink a lot more fluid and she has been drinking a lot more fluid. She is measuring her output to keep close track of what her output is. For several days she tried not taking fluid pills because some of them are hard on her kidneys and her weight went up rapidly.
The whole management of fluid and preserving kidney function is a tough one. Too much lasix is hard on the kidneys; but a build up of fluid is dangerous to the heart. So... it's about using the minimal amount you can get away with in order to have good cardiac function without stressing the kidneys.

I recall they also had my brother on a special diet with low salt, low potassium. Be sure your doctor (or a nurse in their office) is telling you the best diet for Louise so her kidneys can be happy.

Hang in there you guys! And keep talking to your doctors!
 
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